CD SKILLS Improving celiac disease management in the Danube region by raising the awareness, improving the knowledge, and developing better skills
Partnership papers
European Journal of Pediatrics - Follow‑up practices for children and adolescents with celiac disease: results of an international survey (November 2021)
Adequate follow-up in celiac disease is important to improve dietary compliance and treat disease-related symptoms and possible complications. However, data on the follow-up of celiac children is scarce. We aimed to assess current pediatric celiac follow-up practices across Europe. Pediatricians and pediatric gastroenterologists from 35 countries in Europe, Israel, Turkey, and Russia completed an anonymous survey which comprised a 52-item questionnaire developed by the ESPGHAN Special Interest Group on Celiac Disease. Read more:
Conclusions: Follow-up of celiac children and adolescents in Europe may be improved, especially regarding a more rational use of (laboratory) tests, dietary and QoL assessment, and transition to adult care. Evidence-based advice from international scientifc societies is needed.
ISIS - Glasilo zdravniške zbornice Slovenije/Medical Chamber of Slovenia Journal (julij 2021)
Pages 8 - 13.
Clinical Presentation in Children With Coeliac Disease in Central Europe
The Knowledge About Celiac Disease Among Healthcare Professionals and Patients in Central Europe
Two papers were published in JPGN, the most important journal in the field of pediatric gastroenterology, hepatology and nutrition in April 2021 issue, based on the data collected within the Interreg Central Europe project Focus IN CD. Danube Transnational Programme CD SKILLS project is building on the available knowledge which enabled better uptake of the solutions and early start of the activities.
Previously designed questionnaires were updated according to the lessons learned during the implementation of the project in Central Europe and adapted to individual needs of new partners and to new developments in the field of Celiac Disease (New ESPGHAN CD guidelines - 2020). Project partners from Bulgaria, Czech Republic, Romania, and Serbia translated web-based questionnaires and partners from Austria, Croatia, Hungary and Slovenia adapted the existing ones.
Assessment of state of the art with these web-based analytical tools will enable determination of regional differences in celiac disease management, availability of diagnostic tests and treatment, and analysis of differences in diagnostic delays, clinical picture and detection of existing knowledge gaps within the Danube region.
Participants from all regions were invited to take part in different questionnaires. Centres with different levels of expertise were invited to participate in assessment of management practices and assessment of awareness and knowledge of health care professionals about celiac disease. Patients were invited through extensive network of project partners. Collected data will be compared with data from Focus IN CD project and the data from other regions in Europe and elsewhere.
